I can no longer walk unaided! 😢

This is a tough one

This is such a difficult blog to write.

Today I woke up at 10:45 as normal.

I can no longer walk unaided. 

Yesterday I could take 8 steps before loosing my balance, now I can take none. 

I stood up and tried to take a step, but I just fell.

I had managed to pull myself up again using my bed (I lost the ability to do it with just my hands 2 weeks ago).

So once I got up again, I tried walking again and fell again.

I realised that my ability to walk unaided had just gone.

I shouted of my Mum to come and help me walk to the bathroom.

We were both in tears.

I went downstairs on my bum, as I felt it was safer and my Mum helped me to the kitchen table.

As soon as my Mum had given me my breakfast, she immediately rang my private physio.

Thankfully my physio had a free slot and came to see me this afternoon.

She brought a pair of crutches with her for me to try out, but due to my lack of grip in my hands, I was unable to hold them. 

So on Thursday, she is going to bring a K - walker, with special grips on the handles for me.

My dad went straight out to buy me some aids for the bathroom, until we can afford to move to a bungalow.

Now that I’ve lost the ability to walk unsupported, I’m really in need of a more comfortable wheelchair, that I can control myself.

I just hope I can afford an electric wheelchair and stair lift soon.

From now on, everyone is going to have to bring things to me because I have no free hands.

I have spent most of the day crying that I have now lost a skill, that I once took for granted.

I hope I will still be able to walk with aid for another few months, as I wasn’t expected to need support until November.

Any suggestions in the comments for a comfortable, foldable and lightweight electric wheelchair,  would be very much appreciated.

I’ll be back soon

Chloe x











Comments

  1. Ellen Seidman1 October 2019 at 17:59

    Hi, Chloe. I'm guessing you are in England. Is there a specialist doctor you could see, one who specializes in CP, who might have more insights about what is going on? Is it because of increased muscle spasticity?

    ReplyDelete
    Replies
    1. Chloe Gillmere2 October 2019 at 07:46

      Hi, Ellen. Yes I am from England. I definitely feel like this is partly due to spasticity. I still see my consultant and I have an appointment with him next week. I hope he is able to give me some answers. I don’t feel like people talk about how CP affects you in adulthood enough. I would like to see a doctor who specialises in adults with CP, even if I need to go to another country.

      Delete

Post a Comment

Popular posts from this blog

My future, is this common?

Up until recently my mobility has been pretty good. I was able to walk quite well, just on tiptoe. Even though I have always tired quite quickly when walking, I’ve always refused to use my wheelchair, unless I’ve been in pain. This is because I didn’t  want to loose my strength, my independent walking and I found wheelchairs ugly and unattractive ( I still do ). Over the past 9 months, I’ve found my mobility suffer quite a lot  to the point where I can’t walk any distance really without being in agonising pain. I’m falling every 15 to 20 steps and this is continuing to decrease. Just 2 weeks ago, I could do around 50 steps. Stairs are now almost impossible. I have always been very strict about doing all of my stretches and exercises, but my legs have just become so tight. I don’t understand why this is because I’ve always read that Cerebral Palsy is non progressive. I’m now using a wheelchair constantly, when I’m not at home. As I just have a manual wheelchair and don’t
Read more

I did something new!

Painting my   own nails Due to my Cerebral Palsy, my hands are very weak and I don’t have a lot of grip. This makes grasping small objects very difficult and this often affects my independence. I have never been able to write, as pens and pencils just slip out of my hands, I can’t hold earrings, I can’t squeeze toothpaste out of the tube, zip my own zip ( the list is endless ) .  I always like to try things at least once before asking for help, even if I know I can’t usually do them because I believe  if I try enough times, I may eventually be able to do it one day. I’ve been like that since I was just 9 years old. And I have found it work sometimes. So today my Mum asked if I wanted my nails painting. I said yes, but I wanted to have a try doing them myself first. The first challenge was unscrewing the top, this took a few minutes, but i managed.  Although I found it tiring and slightly painful.  My Mum did help me cut and file my nails, I did try, but I don’t q
Read more